ME/CFS Holistic CoachThe idea of resting before you get tired may seem odd to a non-ME/CFS sufferer but it is a really important concept in energy management. In general we have to get our heads around the fact that rest isn’t just about recovery for what we’ve just done, it’s as much about saving energy for what … Read more
Before I got ill and in my 7 years remission the majority of my pleasure came from physical pursuits. Whether it was a long mountain hike, bombing down the mountain on ski’s or a snowboard, or dancing all night at a festival, these were the times when I experienced the most pleasure. Second to that … Read more
Every morning when I wake up I feel sluggish and poisoned. Sometimes it can be like a terrible hangover, even though I don’t touch alcohol at the moment. After I’ve done my T’ai chi and drank a couple of mugs of hot water I usually feel much better. It makes sense to me that the … Read more
For me a key principle in managing this illness is that we actively need to invest some of our precious energy in health promoting activities. It’s not enough to just live what little life we can and then rest when we’ve had enough. Rest alone will not get us better or even prevent us from … Read more
With May the 12th looming I wanted to do something to help promote ME/CFS awareness. Because of work commitments and the fact that I don’t live nearby I’m unable to attend the all fall down for ME demonstration. Instead, I decided to write to my local paper and yesterday they printed my letter. Could you write to your … Read more
For those of us who are lucky enough to be well enough to take a holiday, air travel can bring its own challenges. For some of us flying may be the only way to getaway to the sun during winter for some much needed vitamin D therapy. However I have found that I regularly pick … Read more
There are many books aimed at people with ME/CFS. However as yet I haven’t found one that offers easily accessible, comprehensive self-help advice in both a down to earth, practical manner that also takes a holistic approach to health. I’ve been writing my book so that every sufferer can find everything they need to know … Read more
This may seem a strange idea; chronic illness sufferers don’t very regularly have cause for excitement. But on the other hand, as exciting events can be rare, they can be even more exciting when they do happen! I’m going on holiday next week, back to the idyllic Spanish village that I lived in for 8 … Read more
Recently I’ve realised I’ve got out of the habit of being happy. It’s been a combination of things, one piling on top of another. I’ve been feeling ‘below baseline’ for a couple of months now. I’ve made very slow progress from a viral crash, (or maybe I’ve been dealing with several infections in sequence?) I’ve … Read more
In an earlier post I explored the role of loving-kindness in the pursuit of happiness, not in terms of receiving but in terms of giving. We can’t necessarily control how much love and affection we receive from others but we are in control of how much we can give out. Giving love is a wonderfully … Read more
