Here’s a post I wrote for the Inspirational Corner of the ProHealth website. ”One very valuable lesson that I’ve learned from my experience of chronic illness is that happiness has little to do with what happens to us. I don’t mean to say that we’re not going to have all sorts of difficult emotions in … Read more
In last week’s post on the results of my damage limitation questionnaire I promised links to the articles that I’ve already written that address some of your concerns. I’ve realised that not many of my older posts address your concerns as directly as I’d like them to. So I’ll be focusing on addressing them more … Read more
A big thank you to all of you who have been filling out my questionnaires! They are really helping me to get a great idea about what you most want help with in terms of living better with your chronic illness. I believe that there are 8 steps towards living a great life despite chronic … Read more
You know when you don’t think about something for a long time and then suddenly its gets thrust into your awareness several times in a week? These are things I tend to pay attention to, and this week the issue of goals keep showing up for me. Now I’m a pretty motivated person, I have … Read more
I want to thank everybody who is helping me to understand how best I can help by taking part in my questionnaires. My questionnaire on the second step to living a great life despite chronic illness is now ready and I’d be really grateful if you could spare a couple of minutes to fill it … Read more
Because I want to be able offer my help in the most effective way possible I feel it’s really important to ask what you need help with and what kind of help you want. I’ve identified 8 steps towards living a great life despite chronic illness and I’ll be consulting you about each of the … Read more
I’ve had a bit of a personal epiphany this week. Just like many epiphanies it has resulted from several ideas floating around in my head all coming together to make more than their parts. It resulted in one big but very simple truth shouting out at me, and it’s something I want to share. Our … Read more
Today I’d like some help. The Shropshire ME Group are working with the Clinical Commissioning Group to provide doctors with a simple pack that can be given to patients when they are first diagnosed. I’ve written a rough draft of what I’d like to have been told, including titles of leaflets providing more information. (It … Read more
I started this post over a week ago and then I came across this post from Toni Bernhard which is amazing and adds great depth to the advice that follows: Be realistic about what you think you can manage. Make sure you can rest the day before and after any engagement that might push you … Read more
Christmas can be an exhausting time even if you’re full of energy, but for many people with chronic illness it can be a time of huge anxiety. It’s not just the preparations for Christmas that can take it out of you, it’s also all the added socializing that might be expected of you. And family … Read more
