After some very helpful feedback I’ve decided to simplify my self-help survey. It seems that it was too overwhelming, and I totally understand. If any of you reading this are completely recovered and have the stamina for the full survey you can find it here, otherwise I would be really grateful if you could answer … Read more
I’m a big fan of yoga, before my last major set back, I used to practise nearly every day. Now that my energy is starting to return, I’m starting to get down onto my mat a little more often again and remembering why I love it. I do a very gentle routine of about 20 … Read more
Please help me learn more about what has helped you cope with, manage and recover from ME/CFS. I am interested in the things that we can do to get better and live happy and fulfilling lives. Most of what I write about is what I have learned from my experience, and from the many books … Read more
As with many chronic illness one of the most crucial factors to managing ME/CFS is making sure that we don’t overdo things. But one of the most frustrating things about this illness is that our ability level seems to chance from one day to the next, often without any obvious reason. Sometimes doing what we … Read more
I went with my family to see the Olympic torch this week. It was passing my brother’s house which is the perfect distance away for my daily walk. I have to admit that I didn’t have much excitement for seeing the torch. I really went just to get my walk in. I found I had to … Read more
The experience of having ME/CFS may not appear to be a very positive one and if asked if I’d prefer not to have it, I’d have to agree. However I have it, there’s no point in wishing I didn’t and I’m very grateful for all that I’ve learnt from the experience. One of the most … Read more
T’ai chi is a wonderfully gentle form of movement and exercise that can be appropriate to all levels of physical ability. It can also result in increased energy levels which are particularly noticeable if your energy levels are low in the first place. T’ai chi along with Chinese medicine (and a number of other alternative … Read more
As I’ve been dipping my toes into the ME/CFS online community I’ve noticed how there seems to be a bit of a division between ‘cure campaigners’ and ‘self-helpers’. I guess the most balanced writers have as foot in each camp, but with limited energy it’s understandable that some of us choose one camp to focus … Read more
This isn’t another book review as promised. I’m writing this on the day before my holiday and I haven’t got done what I’d hoped to get done by now. Mainly because I’ve not been doing very well for the last 3 weeks, I’ve been experiencing a bit of a relapse. I’ve decided the book review … Read more
It never fails to amaze me just how wound up I can still get by people who claim to be experts completely ignoring the fact that ME/CFS is an illness with a physical cause. (I think I may still need to work on my non-defensive attitude!). The authors try to mask their obvious assumption that … Read more
