This is a post I wrote especially for ProHealth’s Inspirational Corner and first appeared there a couple of months ago. I’m just starting to come out of a fairly substantial crash… again! Although I’m usually pretty good now, at staying within my energy envelope, I allowed myself to get complacent about my recent high energy levels and then … Read more
Monday 9th July (Today!) 10am Pacific; 1pm Eastern; 6pm UK 7pm CEST Do you struggle to deal with the changing energy levels involved in chronic illness? Do you find you get carried away and do too much when your energy levels are good then suffer misery and low mood as your energy levels plummet again? … Read more
Yesterday I had a wonderful adventure. I’ve been thinking about doing it for a while with some hesitation. But as I’ve decided I want to say yes to life as often as possible, I decided I had to at least give it a go. Some friends of mine (Lynn and Brian) run a bike shop … Read more
Have you ever been told ‘don’t blow your own trumpet’? Unfortunately this and other values like ‘pride comes before a fall’ have been drummed into me to the point that I used to find it really difficult to even recognise to myself that things are going well, I always felt I had to down play … Read more
The Guernsey Literary and Potato Peel Pie Society by Mary Ann Shaffer and Anne Barrows I’ve just read a lovely uplifting book that fit perfectly with my criteria for being really entertaining without overstimulating or causing too much emotional pain, so I just want to share. Entertainment 5/5 low stimulation 5/5 emotional pain: occasional, fleeting … Read more
This year I made what could be seen as a very ambitious resolution to make the world a better place. But the reason I made it was that I wanted to show how we don’t have to have lots of energy or even have to try very hard to contribute to making the world a … Read more
Come join me on Monday 11th June 10am Pacific; 1pm Eastern; 6pm UK; 7pm CEST. Difficult emotions are a common visitor to anyone living with chronic illness. They are an understandable reaction to difficult circumstances. They can’t be avoided but they can be dealt with masterfully! This workshop will teach you how to masterfully deal … Read more
Now how often would you expect to see the words ME/CFS and Flamenco dancing in the same sentence? Well I’m very proud that I’ve been able to put them together! This week I went to a Sevillana dance class and 3 days later I can happily report that I’m none the worse for the experience, … Read more
I went for a wonderful walk today. It was especially wonderful as it was the first ‘proper’ walk in the countryside that I’ve been able to manage for several weeks (if not a couple of months). The sun was shining and there was an abundance of different shades of green. We’ve had so much rain … Read more
I wrote this post to take part in the Mass Observation day that this year coincides with the international ME/CFS awareness day, thinking I could kill two birds with one stone. The idea of the mass observation is that it captures the every day lives of people int the UK. Although I’m not actually in … Read more
